Saturday 12 December 2009
ok week sixteen of second time round
This time im off work 16 weeks in to second try at therapy and wow im HCV negative - work are trying to get me to go back - and dont understand that i still need to complete the course of meds. I am seriously worried because first lot of treatment i worked and it rebounded at month ten after never really hitting negative - now its really working and i am convinced that itr is the lack of stress and pressure and the ability to rest when needed that is killing the virus.
Any hows hope all is well
lewis
Monday 14 July 2008
The Yearning Tree
Hi guys how you doing? its been a while since i wrote in you in fact nearly a year has gone by. The fact of the matter is that my life has changed beyond recognition.
My treatment failed and so i am still co infected with HIV and hep c however i met an amzing man, a german called joerg and we are very much in love. We have been together nearly a year now, and although everything is fine i have given my partner Hep C and i am now supporting him through hep c treatment, so i thought i would give you an update on my thoughts, feelings our ups down and the best thing of all a little bit of fantasy.
I have called this section the yearning tree, because although everything is great, i wish i earnt more money, i wish joerg hadnt got hep c and i wish in general that we could have the things that we fight so hard for, so im going to sprinkle a little bit of my special brighton fairy dust on this section and incluse some short stories, poetry and just a little bit of kinky fantasy on a life less ordinary so i hope you like. speak soon my fellow peeps, see you soon.
Tuesday 14 August 2007
PRIDE:a becoming or dignified sense of what is due to oneself or one's position or character; self-respect; self-esteem.
Sunday 29 July 2007
giving, getting, going
ok i havnt wtirrten in my blog for a while, so this could be a long one!
Unfortunately for me the Hep C treatment hasnt worked, i managed 32 weeks of treatments but apparently the virus had reappeared after 20 weeks in to treatment.
As you have probably gathered it sent me rather loopy, but since i have stopped treatment i have come back more or less to my normal self.
Because the hep c was caught in the accute phase i dont have any liver damage and the hospital are keeping a close eye on my. Apparently they dont get many people like me - go figure.
So what have i been up to? Well i have been enjoying the return of my life really, i have been on a few dates, which has been nice, but strange, and going out with friends, and although i shouldnt have i have been partaking in a few drinkies.
But things are quieting down now, and the old things that used to bother me have returned, my weight has returned with avengence but unfortunaltely i am learning that i cant get away with eating cheesecake anymore, and now that i am not struglling through combination therapy, i am struggling with all the old habbits, smoking, being bored with my job, and generally being a grumpy old git!
This has taught me alot, gosh i didnt realise how nutty i had actually got while on treatment and god do i value my sanity! The hospital have asked me to set up a support group which i intend to follow through on.
I have been on the commercial side of health care for 10 years, and after my experience it is time to give something back. I am dealing with the hep c nurse at the moment to see what we can get organised, because there isnt a gropu in brighton.
And you might wonder what the picture is of above, well its a drawing of part of the village that i was bought up in in worcestershire, a little known place called inkberrow in worcestershire. I thought it was appropriate, because the hep c experience has truley bought me and my family closer together.
I have just had the most lovely weekend, i drove to shrewsbury and went to a gathering of the online support group, next time i will bring a camera, it was lovely to meet you all. I was nervous when i met you all, but within a couple of hours started to feel at home, next time i want to spend more time to get to know you all, but being in the midlands i felt the need also to go and see my family and my little nephew, who is just sooooo cute!
So just to finish off, just to let you know my post treatment hep c belly is growing, so i am doing the half marathon for the sussex beacon HIV charity in brighton. Raise some money and loose weight. I am dusting off my trainers, getting back in touch with my trainer and lets see what happens. i may have a couple of the nastiest bugs known to man, but it aint going to stop me moving forward. This new positive outlook is primarily due to certain members on the forum and family and friends, who without you all, i dont think i would still be here.
Life is strange and interesting, you start out when your younger thinking you can shape your life, but in the end its your life that shapes you. x
hugs
lewis x