Wednesday, 30 May 2007

ok and now for todays news

ok had the results of my PCR today and the virus has broken through big time, its back in the millions and i really do not know what to think.

In a way i am lucky, i caught this early, and i dont have liver damage yet, it will be 20 years before that happens, so in a way i have to count my blessings. it doesnt stop my head being all over the place though.

My neutrophils are rock bottom and this week, the last week before going back to work, i have had a severe tooth and gum infection, i am on antibiotics for it and just feel really shit, have had nasty stuff coming out my mouth and am totally fed up!

Have got to go back to see the nurse on friday to discuss further options as this could be a blip caused by other medication that i am on. Im trying not to get upset, but to be honest, the hell i have been through the last six months just makes me so fucking angry, i always knew there was a chance this would not work, but was assured i had a very good chance.

all i can say at the moment is bollocks. to be honest i am totally numb .

Anyway im signing off cos just dont know what else to write.

lewis
xx

Tuesday, 22 May 2007

cor blimey!


Don't panic!


Literally just posted the last one, but thought id just let you guys know, just by expressing this, i feel tonnes better, or should i say a few pebbles lighter - thanks Jae, chrissy and Uncertain.


Think im going to try and get some kip again, its now nearly 2am and hopefully getting it out, means ill get some sleep tonight.


big hugs


lewis

theres something not quite right


Theres something not quite right tonight

Thoughts running through my head

lay here in the quiet and dark

sheets clinging to my legs


Can you see? Whats running through my mind

The darkest thoughts, to leave it all behind

These things arnt safe, god where is the good?

My mind plays tricks, thoughts of gushing blood...


Sweat trickles down my spine,

the darkness seeping in

Where is unconcious bliss?

Enduring the passing time


Can you see? Whats running through my mind?

The darkest thoughts to leave it all behind

I hold out my hands, pleading in my bed

Cos all is done, but i dont want to be dead


Laying here in the night

knives run around my head

just had a vivid thought,

graphic way to end up dead


Can you see? Thoughts running through like lead

A Car, the sea, my life , my soul

the car hits a barrier, a pole

flys up smashing into my head



These thoughts are the darkest wine

Of blood and violence i find

Whats wrong with life,

why cant dying be kind?


Can you see? Thoughts running through my mind?

the darkest things, to leave it all behind

These things arnt safe, when all is said

The darkness comes when sleeping in my bed.


Isolated virus killer

wow found this on you tube, pretty much describes everything

hugs
x

Friday, 18 May 2007

Hmmmmmm!

Cor ! This medication they give you for hepC is toxic Stuff. Started Anit - depressants monday, as really been having nutty side effects hit me.

Very dark thoughts, and a place that i don't want to go to very often.

Had a really lovely weekend planned, was driving up to Worcester to see my sister tonight, and gorgeous little nephew, stay at mum and dads, and then drive up to the hep C forum on saturday, however my collective brain cells had another idea.

Watching holby city last night, and looked around the flat, been quite under the weather recently, so not been my usual efficient self. The flat is a state, and im due back at work monday, and i started to think of all the things that would have to be done in order to achieve all my goals, but can't cos i am physically and mentally knackered! My heart starts racing, panic attack ensues. i go to bed and start having very nasty thoughts.

Finally get to sleep, wake up this morning (think i finally fell asleep about 4am!) at six thirty and just for an instant everything was ok. Then the same horrible feelings began to invade.

Its like an insipid black fear that crawls down your shoulders, drips down your back and makes you shudder! A fear and depression that nothing is alright and everything is wrong.

You worry about what people think of you, whether you look strange, in fact everysort of self doubt available, piles on you like a tonne of gravel and to get out you have to remove it pebble by pebble.

Rang my parents told them i wont be coming up had a panic attack
Messaged some dear friends on the forum to appologise for cancelling - they rang me, the little sweeties, panic attack ensuing. big hugs to yuo both!

I think your amazing!

Rang my sister, and work colleague and got myself off to the doctors - this shit is fucking strong!

Spoke to my GP, explaining, he knows my history! Signed off for another two weeks.........

He did suggest a small does of an anti psych drug, but refused saying ill see what the Anti depressants do! Woah!!!!

Deep breath right now!

So get back home, finally starting to feel the pressure is off, i can get through this my own pace and own way. Decide to have a bath. Shave my head, generally try and be bit more in control, possibly considering cleaning the flat, at least it is only one job, one step forward and not a tonne of gravel all at once.


My mother rings, mum if you read this, take note!

I know they love me and want to be there, however my mother says " Were coming down tomorrow to give you a hug!"

Would love it, but - i look at the flat, think of allthe work i have to do, what i will have to do in order for me to feel comfortable with my family coming down, and instantly

Oh my god - washing - loads of it, cleaning -loads of it, self grooming - loads of it, actually every job in the house really, and instantly THAT PRESSURE IS BACK! again, rather than one job, 20 jobs and that black oil begins to flow!

So mum if you read this and i think i expressed it on the phone but just incase your still thinking to show up tomorrow.

The only control i have right now, because of this medication, is that i can get through this in My own way, and at MY pace. And as much as i want a hug, let me come up and get one, let me get one when i decide and when im mentally prepared.

I love you all deeply, but put this extra pressure on me now, and my control goes away.

So calling my sister later to reinforce that point, and if they do appear tomorrow morning, iknow it is done for a good reason, i will be very angry.

Hugs

From lets hope the cipramil kicks in soon!"

Wednesday, 16 May 2007

Monday, 14 May 2007

side effects




Im in the bathroom , looking down the bowl


,feeling very sick and incredibly old


i knew what i put down there, just an hour before,


it wasnt very pretty, diarhoea is a bore.






So the rented accomodation i live in now


is getting to know me, my insides take a bow


Ive put on the most incredible show


toilet humour galore and my insides now glow!







Im taking imodium, motilium they said


its a stop and start gamble, due to the meds


I need some strategy, to begin to cope


cos along with my inerds, ive flushed down my hope.







What will the future hold for someone like me


Do they make a mobile toilet, with a built in TV?


I cant go more than thirty paces from the loo


do they make a harmorhoid cream with built in superglue?







So keep on smiling from the top to the bottom,


Cos inside im gurgling, and feeling quite rotten


So what will my doctor say on thursday morn?


My triglycerides are through the roof, i feel full of scorn







Blood tests for this, blood tests for that


ALT's, LFT's, Haemaglobin some more


CD4, viral loads,my veins are so sore


So here on the toilet, my butt is sat.







Im not after sympathy, or a sideways glance


but just to express, have my cheeks got a chance?


I hope all is well to you heppers on here


cos to me your all very very dear!






hugs
lewis