Sunday, 29 July 2007

giving, getting, going



ok i havnt wtirrten in my blog for a while, so this could be a long one!

Unfortunately for me the Hep C treatment hasnt worked, i managed 32 weeks of treatments but apparently the virus had reappeared after 20 weeks in to treatment.

As you have probably gathered it sent me rather loopy, but since i have stopped treatment i have come back more or less to my normal self.

Because the hep c was caught in the accute phase i dont have any liver damage and the hospital are keeping a close eye on my. Apparently they dont get many people like me - go figure.

So what have i been up to? Well i have been enjoying the return of my life really, i have been on a few dates, which has been nice, but strange, and going out with friends, and although i shouldnt have i have been partaking in a few drinkies.

But things are quieting down now, and the old things that used to bother me have returned, my weight has returned with avengence but unfortunaltely i am learning that i cant get away with eating cheesecake anymore, and now that i am not struglling through combination therapy, i am struggling with all the old habbits, smoking, being bored with my job, and generally being a grumpy old git!

This has taught me alot, gosh i didnt realise how nutty i had actually got while on treatment and god do i value my sanity! The hospital have asked me to set up a support group which i intend to follow through on.

I have been on the commercial side of health care for 10 years, and after my experience it is time to give something back. I am dealing with the hep c nurse at the moment to see what we can get organised, because there isnt a gropu in brighton.

And you might wonder what the picture is of above, well its a drawing of part of the village that i was bought up in in worcestershire, a little known place called inkberrow in worcestershire. I thought it was appropriate, because the hep c experience has truley bought me and my family closer together.

I have just had the most lovely weekend, i drove to shrewsbury and went to a gathering of the online support group, next time i will bring a camera, it was lovely to meet you all. I was nervous when i met you all, but within a couple of hours started to feel at home, next time i want to spend more time to get to know you all, but being in the midlands i felt the need also to go and see my family and my little nephew, who is just sooooo cute!

So just to finish off, just to let you know my post treatment hep c belly is growing, so i am doing the half marathon for the sussex beacon HIV charity in brighton. Raise some money and loose weight. I am dusting off my trainers, getting back in touch with my trainer and lets see what happens. i may have a couple of the nastiest bugs known to man, but it aint going to stop me moving forward. This new positive outlook is primarily due to certain members on the forum and family and friends, who without you all, i dont think i would still be here.

Life is strange and interesting, you start out when your younger thinking you can shape your life, but in the end its your life that shapes you. x

hugs

lewis x

6 comments:

Joyfulsister said...

Hey lewis... Just stopping by to say Hi. Well it's good to know you don't have much damage done that is good to know. Well as for me I'm on tx till end of September and we shall see.I haven't done much blogging it's been just yucky couple of days but I did add a new Pic with a waterfalls... talk to you later my friend.. Be Good !!! LOL Aloha Lorie

Puddock said...

Hi Lewis

Bumped into your blog when I was browsing. Just wanted to wish you luck and to say what a wonderful line that is about thinking you can shape your life but it's your life that shapes you. I really get that one!

Take care

Puddock

The Growler said...

Hi Lewis
Sorry to hear the treatment didn't work out for you.
I thought your comment about thinking we can shape our life but our life shapes us, was very poignant.
All the best
Ben

scammitybabble said...

hi Lewis,met you in Shrewsbury unfortunately only briefly as we had to disappear to walk the dog-were hoping to see you that evening.I do hsve some picsof the day if you want copies-quite a good one of you!
Thanks for making the effort to join us,will have a proper chat next time we get together x R&M x

Ros said...

Lewis

You are a star my dear.

Was fab to meet you briefly in Shrewsbury. I can totally understand your needing to go off and munch your coot nephoo - how lovely! We'll hopefully see you again very soon - always wanted to visit Brighton.

I'm sad the treatment didn't work this time but there's no rush and your attitude to life is so positive that you'll be one of those inspirational people you talk about very soon, of that I've no doubt.

Good luck with the half marathon :)

Maria said...

Hiya Lewis

What a lovely post - wish I could write like that (my blog tends to be a bit too "matter of fact", I think!!).

It was great to meet you at Shrewsbury & I can't wait to come to Brighton so that we can get to know each other a little better.

I'm really sorry to hear that treatment hasn't worked for you - you are such a nice guy & I feel that you sooooo deserve the break of successful treatment. But hey, keep up with the good humour & optimism - I always find that keeps me in good stead!

Luv, hugs n best wishes
Maria xx